By David William Jedell, May 3, 2018
Alfie’s Parents 
Alfie was born healthy and on time. We were so happy to have him with us going home, our beautiful boy. He grew and fed well, but was exceptionally sleepy and didn’t meet milestones. After a couple of weeks we noticed Alfie wasn’t doing things he should be, like lifting his head up, grabbing his dummy, eating his hands, etc. We also noticed he was doing a jerking movement with his hands, arms and legs, and his eyes would roll up. Alfie often had his hands clenched into a fist. We took him to doctors three times, who said he was lazy and a late developer.

Months went by and Alfie went backward instead of forwards. He started making more jerking movements and wasn’t himself at all. Finally Alfie became agitated, crying inconsolably. Then Alfie got a chest infection…